#MedicalUpdate ~ #AliTheDragonSlayer #Leioymyosarcoma #BookBloggers #Authors #Publishers

I’ve had a bit of a tough time recently so thought it only fair to keep you, my loyal readers informed the best I can with what is going on.

As most of you know I have been fighting Leiomyosarcoma for several years now, it originated in the uterus disguised as a fibroid .. it was only after having a full hysterectomy the pathology came back as cancer. Since then I have had numerous surgeries to remove varying tumours and affected organs but I have carried on with a positive attitude that I WILL beat this dragon.

Hence my blog and user name ‘Ali – The Dragon Slayer’ LMS is known as the dragon, it keeps rearing it’s head and is very difficult to beat. I was told right at the beginning of my diagnosis this particular cancer is ‘treatable’ but not curable.

Anyway, I have been having regular surveillance in the form of CT scans, chest x-rays, ultrasound scans as is standard procedure for this disease. Because it originated as a gynaecological tumour my scans have been abdominal/pelvis and chest because it is known to metastasise to the lungs.

For the last 6 months or so I have been having increasingly excruciating pain in my legs, hips and back. Now I am always alert to any ache or pain in case it is the LMS recurring but I was categorically told by my GP and consultants that it couldn’t possibly be connected and it’s most likely arthritis. Thankfully my house move prompted a change of GP and this one suggested having some x-rays to ‘put my mind at rest’. Fast forward to the results and ‘something’ has shown up, so I was scheduled for a full body bone scan. This also showed areas of concern but the medical team decided they needed an MRi to clarify what it is! So finally after about 3 months of scans I eventually saw my Oncologist for the results … numerous secondary bone metastases in, yep you’ve guessed it, both legs (femurs), hips, spine and shoulder.

I was shown the scan which frankly horrified me .. both femurs have large tumours in them which have disintegrated the bone and are pressing into the muscles. I was immediately referred to the trauma team who have told me I can’t walk and must stay immobilised because the chance of leg fracture is very high. I will need surgery to insert titanium rods into both legs. With a view to then treating the cancer with radiotherapy and chemo. The fear is the cancer has spread elsewhere so I am currently awaiting a full PET scan (either Monday or Tuesday) the trauma team will then decide after seeing the results whether the surgery will simply be palliative to prevent the legs fracturing or more substantial so that I can walk again.

Either way I’m once again in the fight for my life, currently on a large amount of time-release morphine tablets plus Oramorph (liquid) whenever needed for breakthrough pain. Obviously this is making me incredibly sleepy so ‘normal’ life is no longer possible.

I have reached out  to all the fabulous authors, publishers, blog tour organisers to say I won’t be able to fulfil all my review/tour commitments. Thankfully I have some posts already complete and scheduled until the end of the month so they will appear regardless of where I am, but of course I won’t be able to share as much as I would in an ideal world. Any new review or blog tour requests are being refused for the foreseeable future. I will read as and when my body or mind allows and if I can concentrate enough will review at various stages. Frankly I don’t know if I am looking at weeks, months or a year of life remaining so I need to put myself and my family first.

I just want to say a massive thank you to everyone in the bookish community who has sent me messages of love, hope, prayers and support. You are all a truly wonderful bunch and it is so appreciated. I will pop up on social media (probably twitter) when I can but please don’t be offended if I can’t reply personally to each message.

Much love to you all for now .. I will endeavour to keep you updated, Ali  xxxx 

For info there is a donation event via the LMS Facebook page 🙂 

Donate to us on GIVING TUESDAY – November 28th from 8am to Midnight EST and the Bill Gates Foundation will match it! You can double your donation on this day and all fees are waived. Please let all your friends and family know to go to https://www.facebook.com/pg/Leiomyosarcoma-Direct-Research-Foundation-901203783281803/about/

Sadly this is such a rare cancer so I am reliant on support, info and medical knowledge from the USA .. UK has a long way to go to catch up!

My gorgeous friend and fellow LMS fighter Lorene made this for me 🙂 xo

7 thoughts on “#MedicalUpdate ~ #AliTheDragonSlayer #Leioymyosarcoma #BookBloggers #Authors #Publishers

  1. Keep slaying those dragons, Ali. Your warrior spirit is embraced by those who know you. You’re surrounded by prayers and love as you continue your fight..Healing energy and love xoxo…
    ~Robyn

  2. My heart goes out to you, Ali.

    Don’t you dare worry about authors and blog posts and tours, you just concentrate on being with your family and keeping the cancer at bay for as long as possible.

    You have done brilliantly so far, just keep fighting.

    xxx

  3. I’m so very sorry to read this. I lost my Dad to Cancer in August this year & understand most of what you & your family are going through. Sending you so much love & strength & pain relief!. xxx

  4. You are such a warrior, Ali! I admire your courage and strength. Sending all my love, hugs and positive thoughts your way! xx

  5. Keep on fighting those dragons one day at a time. Thinking of you and if wishes could make you better you’d be dancing on tables waving your knickers in the air right now.

  6. I can’t begin to imagine what you’re going through, Ali, but I’m in awe of your positive attitude and hope this carries you through to better times. I wish you all the best in your battle.

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